Beating Glioblastoma: Researchers Dominic D’Agostino and Tom Seyfried

Beating Glioblastoma: Researchers Dominic D’Agostino and Tom Seyfried

Saving Dan’s Life… In April, Dan will have gone three years without the return of glioblastoma.  This is unusual, some would even claim highly unusual.  I would like to say that my love and the love of his family and friends has been an indomitable shield…

Scanxiety:  When Waiting is Life or Death

Scanxiety: When Waiting is Life or Death

Scanxiety.  Recently in the American Brain Tumor Association’s online support group, another caregiver used this term.  It perfectly explains the panic attacks, loss of sleep and raw emotions that rear their ugly heads about a week before Dan’s MRI.  It takes everything I’ve got to…

What Every Crazed Caregiver Needs: Lessons on Meditation!

What Every Crazed Caregiver Needs: Lessons on Meditation!

Sharon Salzberg’s 28 Day Meditation Challenge Starts Tomorrow! When my husband came home from the hospital after his craniotomy, our house was constantly full of visitors. Every one of them would say, “Rhonda, why don’t you go do something for awhile…we got this!”  Finally, I…

Days Two-Four at Cleveland Clinic: Radiate and Sedate

Days Two-Four at Cleveland Clinic: Radiate and Sedate

When I saw this photo of my husband so cleverly manipulated by his dear friend and fellow artist, Anthony Mestas, I laughed my rear right off (only figuratively unfortunately).  It is a perfect visual representation of how Dan felt on days two through four at…

Day One at Cleveland Clinic: Demagnetized and Electrified

Day One at Cleveland Clinic: Demagnetized and Electrified

In case you are just joining us on this blog adventure, my husband Dan was diagnosed with glioblastoma (brain cancer) in April 2013.  Thus far we have been incredible lucky.  Most people with glioblastoma do not make it very long.  Not only has Dan survived,…

Cleveland, Don’t Let Me Down.

Cleveland, Don’t Let Me Down.

On Saturday I will be leaving my daughter, a senior in high school. I will be leaving my job and more importantly my paycheck. I will be leaving the house that I love in the little town that I love. I will be leaving my…

Diagnosed with a Brain Tumor? One Caregiver’s Guide to Glioblastoma and the Universe, Chapter One.

Diagnosed with a Brain Tumor? One Caregiver’s Guide to Glioblastoma and the Universe, Chapter One.

Last night my friend, Patty told me about a woman that was just diagnosed with brain cancer. My heart shattered as she unfolded this family’s monster sized challenge… four small children and a diagnosis of glioblastoma.  In a matter of minutes I had dumped a…